Following a career in thoracic medicine, Vanessa joined the Lung Cancer Team at Aintree University Hospital, Liverpool in 1999 as a Clinical Nurse Specialist. Vanessa’s interests in lung cancer and mesothelioma include improving the patient and carer experience throughout the pathway. She is interested in the development of nurse led services and pre –post habilitation and is an active member of the Northwest Lung CNS group. She has given invited presentations on both national and international level, on various aspects of lung cancer including: Wellbeing; Holistic Needs and surgical pathway. She has previously held the positions of: Thoracic Surgical Group Chair; BTOG Steering committee member. She is a current member of BTOG, ITONF, IASLC sitting on the Nursing and AHP committee.
Vanessa is delighted to be a NLCFN committee member, currently serving as chair for the forum.
Karen was appointed Macmillan Lung/Palliative CNS in April 2010, prior to this her career was mainly in the acute sector. Karen worked on medical wards, ICU/HDU as well as being an A&E Sister for six years and Medical Nurse Practitioner for three. She trained at Stepping Hill hospital and Manchester University before moving to Macclesfield District General. Karen attained her Masters of Arts in Advanced Nursing Practice from John Moores University in 2012 and became a Non Medical Prescriber in 2013. In June 2018 she was honoured to receive the Queen Elizabeth Queen Mother award for Outstanding Nursing Service from the Queen's Nursing Institute.
Karen has been a member of the NLCFN since appointment. The forum has been instrumental in supporting her development. She has attended two Lily workshops leading one. This led to being able to present at World Lung in Denver 2016. Karen has also presented at NLFCN conference these experiences have built her confidence and understanding of lung cancer care. She is now Lead Lung CNS at East Cheshire leading a team who support patients from pre diagnosis to end of life in primary and secondary care.
Carol Davies Macmillan Lung Cancer Nurse Specialist, Nevill Hall Hospital, Abergavenny. Aneurin Bevan University Health Board Wales.
Carol has worked as a Macmillan Lung Cancer Nurse Specialist since 2003. It was a new post which she had the opportunity to develop. Carol proudly leads the lung cancer nursing team within Nevill Hall Hospital, working with and in partnership with the proactive team and enthusiastic MDT colleagues.
Patients are seen pre diagnosis, at diagnosis, during treatment, at oncology, respiratory and nurse led clinics; supporting patients throughout their lung cancer pathway.
Carol regularly attends and contributes to lung cancer meetings at local and national levels and has represented the Health Board at international meetings. She is a forum member and past chair of the All Wales Lung Cancer Forum.
Special interests include Lung Cancer Patient experience, communication skills, quality of life issues, and patient stories. She was honoured when asked to present a poster presentation at World lung in Denver 2016. Although daunting it was an incredible opportunity to share a patient’s experience of living with mesothelioma diagnosis with a world audience.
Carol has been a NLCFN forum member since 2004 and was thrilled to join the committee in 2012. Being a part of this great forum has enhanced her confidence, her professional development and influenced service development. Carol is NLCFN representative for NICE, UKLCC & AWLCF.
Jackie first gained oncology experience working on various wards and departments covering different areas of nursing on medical oncology and radiotherapy wards and the leukaemia unit. She then worked as a clinical research nurse from 2002-2007 working on phase one and two clinical trials within the Christie Hospital Trials Unit.
From 2007, Jackie worked as a Lung Cancer Clinical Nurse Specialist. This was a newly created post at the trust. Jackie and her colleague have been involved in the development of lung cancer patient information, and supporting patients in both an inpatient and outpatient setting working with 1400 new lung patients at their treatment hospital mainly in the role of assessment and review of lung cancer patients on treatment, symptom control, emotional support and liaison within the multi disciplinary team. Jackie leads on the concurrent treatment pathway.
Jackie completed the Nurse Prescribers Course in 2008 and is currently one of a growing number of nurse prescribers at The Christie. Jackie has recently completed the MSc in Advanced Practice course at Edge Hill University. Her role has since become a Lung Cancer Nurse Clinician which is a role Jackie has been in since May 2017.
Jackie is currently the Vice Chair of the NLCFN committee.
Not being quite sure what to do with a degree in Moral Philosophy, Lucy went in to nursing in 1988 at Thomas, Guy and Lewisham School of Nursing, where the biggest success story by their cohort was deemed to be the voting out of cardboard caps. After the obligatory year backpacking, Lucy found herself in Edinburgh where she did her MSc in Cancer Nursing. And after a few years in Edinburgh she landed a post in 2001 in Oban as the Macmillan Palliative Care Nurse for the District General Hospital. In the 13 years there, the fledgling nurse-led chemotherapy service, initially a small aspect of her job, developed into an established 5 days a week chemotherapy/haematology day unit supported by consultants from Glasgow. While in Oban Lucy completed a PGCert in Teaching and Learning in Higher Education, Independent Prescribing and Clinical Assessment courses.
Oban provided a beautiful, in somewhat wet, backdrop to her love of the outdoors and she spent much time off work on the water or up mountains and was lucky enough to be in the mountain rescue team for 10 years. Then the Lung Cancer Nurse post came up in Inverness and, continuing her general drift northwards, she moved up there in 2013. Since taking up post, Lucy has been on the committee of the Scottish Lung Cancer Forum for Nurses. It has been very gratifying to find herself working with the dedicated and inspirational respiratory and oncology teams there. Lucy love the life there, in and out of work.
Lavinia is Nurse Consultant, Thoracic Oncology, at Royal Papworth Hospital. Her oncology career started in 1997 as a clinical research nurse and database manager. As a NLCFN member she was awarded the first Research Interest Group Grant to look at the psycho-social impact of taking TKIs. In 2013 she became a committee member of the NLCFN and was involved in developing the Using Your Voice workshops and Promoting Research in Oncology Nursing project. She represents the NLCFN at the UK Lung Cancer Coalition, Lung Cancer Europe forum and is a member of LORD NCRI subgroup.
Running 2 nurse-led follow up clinics per week and working within a dedicated multi-disciplinary team, it is an honour to look after patients with lung cancer and mesothelioma. The NLCFN provides an excellent way to share ideas and expertise and improve services for patients and their carers.
Julia McAdam has worked as a Macmillan Lung Cancer Clinical Nurse Specialist in Shropshire for fifteen years. Prior to that sheworked in Haematology, Oncology and as a Ward sister at her local hospice. In 2014 Julia was given the opportunity to cover the role of Lead Cancer Nurse for the Shrewsbury & Telford Hospital NHS Trust. This led to numerous leadership opportunities within the Trust, and in particular the relationship that was established during 2015 with St. George's Hospital in London, as part of the NHS IQ Buddy programme.
Julia is an active member of the West Midlands Lung Cancer Forum for Nurses, stepping down from the Chair in June 2018. The West Midlands forum promotes research and innovation and encourages peer support for approximately 40 Clinical Nurse Specialists across the region. More recently the group has extended the membership to a Lung Cancer Specialist Radiographer and a Lung Cancer Research Nurse Specialist. This has allowed to look at the different roles and work more collaboratively with our tertiary centres.
In 2016, Julia and her colleagues launched the Lung Support Programme at their hospital. The aim of the programme is to support Lung Cancer patients with the holistic elements of their care needs, as well introducing a physical activity facilitator to help promote their recovery from treatment. This innovation came after colleagues had learned of a similar project at the NLCFN conference in Windsor.
Julia was awarded an MA in Medical Ethics and Law from Keele University in 2007 and has just completed the Non Medical Prescribing module (Wolverhampton University) in order to improve the current nurse led services offered to patients.
Macmillan Lung Nurse Specialist
The Rotherham NHS Foundation Trust
Josie is a Macmillan Lung Cancer Nurse Specialist at The Rotherham NHS Foundation Trust and works with patients and carers throughout their diagnosis of lung cancer and mesothelioma, during treatment and rehabilitation. She is a non-medical prescriber and accredited facilitator for the Connect Advanced Communication Training Programme.
Her past positions include: Clinical Nurse Specialist in Specialist Palliative Care and Lead Cancer Nurse. She has experience in haemato-oncology and managing the outreach chemotherapy unit.
Josie co-facilitates the NLCFN annual workshop and contributes to the Cancer Nursing Partnership, Living with and beyond cancer programme. She represents the forum on the BTOG steering group.
Josie participates in research and audit projects and is involved in pre/rehabilitation programmes for patients undergoing surgery and treatment for lung cancer. With the support of the Research Interest Group (RIG) she has completed a piece of research on ‘What do people living with and surviving lung cancer want and need from the Recovery package?’
Pamela Rose is a Macmillan cancer nurse specialist within NHS Lanarkshire. With nearly 20 years palliative care and oncology nursing experience she has vast experience of delivering cancer care across various settings including the NHS, private sector, local hospices (both in-patient and community), a national cancer charity and a local authority.
Since 2015 she has been working on NHS Lanarkshire's Transforming Care After Treatment project. The aim of the project has been to test and develop the use of electronic patient reported outcome measures in the delivery of supportive care to lung cancer patients.
Rachel qualified as a nurse in September 2000 and initially specialised in HIV nursing, undertaking an MSc in Health Care Research.
Rachel has worked at Guy’s and St Thomas NHS Trust for 7 yrs and became a Mesothelioma/Lung Cancer Clinical Nurse Specialist 6yrs ago. Rachel really enjoys working in the field of lung cancer as it has many similarities to HIV in the early days. Since working in this role Rachel has become part of the Asbestos Sub-committee at Parliament and helped set up a nurse led clinic for patients on TKI’s. Rachel also runs a successful Mesothelioma support group and publishes a newsletter for all the Mesothelioma patients who attend Guy’s and St Thomas’ for treatment. As part of Rachel’s role she has also project managed education programmes for lung cancer health professionals across London on setting up a nurse led clinic and evidenced based prescribing of TKI’s.
Rachel has been a committee member for NLCFN since 2013 and truly enjoys being part of an expert and dynamic team. Rachel also very recently has become a member of The British Thoracic Society.
Since qualifying in 1994, Sandra has worked within oncology, initially at the Middlesex Hospital, London where her interest in oncology nursing first started. She moved to the Kent Oncology Centre in 1997 and has been working as a Macmillan Lung Cancer Nurse Specialist since 2000.
Her role has developed immensely since then with the new developments in treatments and nurse-led initiatives. She has developed a nurse-led TKI clinic which has now expanded to reviewing patients on chemotherapy and immunotherapy. In 2011 she set up a Diagnosis and Treatment information nurse led clinic following MDT, this was as a result of the pathway changing and patients being seen pre-diagnosis.
She has completed the Independent non-medical prescribing course which has enhanced her nurse-led practice.
Her special interest in lung cancer is ensuring patients have a streamlined pathway through effective communication within the multidisciplinary team. More recently she has become involved with developing an immunotherapy assessment tool to ensure safe and standardised assessment for patients receiving immunotherapy.